CurePSP sponsors Outreach & Education conferences providing attendees the opportunity to learn about progressive supranuclear palsy and corticobasal degeneration, and ways to manage the difficult challenges presented by the diseases. Speakers presenting at these educational meetings typically include a physician who is a movement disorders specialist, a physical therapist, a speech and language pathologist, an occupational therapist and a nutritionist. Each speaker gives a twenty to thirty minute presentation followed by a fifteen minute question and answer session. A refreshment break is provided in the afternoon with time allotted for PSP and CBD families to meet and mingle.
In addition to the educational facts learned during the session, persons diagnosed with PSP and CBD and their caregivers and families learn that they are not alone. Attendees leave the meeting having forged new friendships in the PSP and CBD communities, and with the reinforced support of CurePSP’s commitment to the care of the PSP and CBD patient and their caregivers.
Upcoming conferences:
*subject to change
Cleveland, Ohio
Saturday, August 23, 2008*
10:00am - 5:00pm
Marriott Cleveland Airport
4277 West 150th Street
Cleveland, OH 44135
216-252-5333
10:00am - 5:00pm*
Registration fee is $50; each additional guest is $25. Space is still available. If you would like attend, plan to register on-site at the hotel.
Agenda*
9:00-9:30am: Registration
9:30-9:45am: Welcome
9:45-11:15am: David Riley, MD
11:15am - 12:00pm: Janet Edmunson, MEd
12:00-1:00pm: Lunch
1:00-1:45pm: Stacey Walsh, OT
1:45-2:30pm: Debbie Mills, RN, APDA Coordinator
2:30-2:45pm: Break
2:45-3:30pm: Violet Cox, SLP-CCC
3:30pm: Closing
Phoenix, Arizona*
Saturday, October 4, 2008
Radisson Hotel - Phoenix Airport
3333 East University Drive
Phoenix, AZ 85034
602-437-8400
10:00am - 5:00pm*
Registration fee is $50; each additional guest is $25. Scholarships available.
Speakers currently scheduled to present*
Holly Shill, MD
Tove Sondergaard, OT
Margaret Burk, SLP
Jean June, MSW
Janet Edmunson, MEd
Lunch and beverage breaks provided.