Locations
Arizona
Kristina Watts
Phoenix
602-406-4931
kristina.watts@chw.edu
California - Northern
Information: Neurodegenerative movement disorder group (PSP, CBD, MSA, etc.). Caregivers only. Contact Robin Riddle for more information.
Date: Every six weeks (call or e-mail for schedule)
Time: 5:00 - 7:00 pm
Location: Mimi's Cafe, 2208 Bridgepointe Parkway, San Mateo, CA 94404
Contact:
Robin Riddle, 650-233-9277, rriddle@stanfordalumni.org
California - Los Angeles/Southern (Group 1)
Information: This group supports mostly PSP and MSA patients and caregivers, but other neurodegenerative diseases are welcomed.
Date: Saturday (frequency varies; call for information)
Time: 1:00 pm
Location: Kathy Schwaiger's home
Contacts:
Ceri Williams, Sherman Oaks, 818-343-3259, medianet@earthlink.net
Kathy Schwaiger, Thousand Oaks, 805-496-7018, ksquig2@yahoo.com
California - Los Angeles/Southern (Group 2)
Greater Los Angeles - Group 2
Information: Group for patients and caregivers dealing with Atypical Parkinsonian Disorders: Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA),Corticobasal Degeneration (CBD)
Date: Third Saturday of month
Time: 1:30 - 3:30 pm
Location: Kaiser Permanente West Los Angeles Medical Center. Entrance to the parking lot is either from Cadillac Ave. or LaCieniga Blvd. just blocks north of Venice Blvd and the 10 Freeway. Support Group meeting in classroom "D" located on the basement level of the Clinic Building. Security guards will help guide you there.
Contact:
Larry Schenker, 310-441-1488, lschenker@gmail.com
Jenny Lim, 213-568-3476, jenuine121@yahoo.com
Colorado - Northern
Information: PSP/CBD support group meeting.
Location:Faith Community Lutheran Church, 9775 Ute Highway 66, Longmont, CO 80504
Contact:
Philip Stephan, 970-278-1571, step4267@ezlink.com
Colorado - Denver/Englewood
Information: Neurodegenerative movement disorder group (MSA, PSP, CBD).
Date: 2nd Friday of each month
Time: 10:00 am - 12:00 pm
Location: Johnson Adult Day Center, 3444 South Emerson Street, Englewood, CO 80113
Contact:
Helenn Franzgrote, 303-789-9900, jhfranzgrote@comcast.net
Dan Schoenecke, 303-526-5585, dschoenecke@econolite.com
Florida
Debbie Gapsch
Melbourne
321-259-5297
dgapsch@cfl.rr.com
Helen Lavelle
Naples
239-352-2909
hlavelle@yahoo.com
Illinois - Chicagoland
Information: PSP and CBD Support Group for Chicagoland area. Free and open to the public.
Date: First Saturday of every other month
Time: 1:30 - 3:30 pm
Location: The Abington of Glenview, Library, 3901 Glenview Road, Glenview, IL 60025
Contact:
Darren Loveless, 847-729-0000, darrenloveless@yahoo.com
Maine
Information: This group is a support group for patients and caregivers dealing with atypical parksinson's diseases, including PSP, CBD, MSA, etc.
Date: Once a quarter on Saturdays. Call Janet for details.
Time: 1:00-3:00pm
Location:
Contact: Janet Edmunson, 508-872-9967, janet@janetedmunson.com
Maryland
Kate DeSantis
Baltimore
410-785-7004
desantis@curepsp.org
Massachusetts
Information: This group is a support group for patients and caregivers dealing with atypical parksinson's diseases, including PSP, CBD, MSA, etc.
Date: Once a quarter on Saturdays. Call Ann for details.
Time: 1:00-3:00 pm
Location: Lahey Clinic, Boston, MA
Contact: M. Ann Aversa, 617-872-8356, a.finigian@comcast.net
Michigan
Paulette Fox
Mason
517-676-1807
pfox47@yahoo.com
Laurie Burgess
Mikado
989-736-7178
lburgess@i-star.com
Minnesota - Minneapolis area
Contact: Charlotte Tripet, Golden Valley, 763-546-1694, chartrip@yahoo.com
Nebraska
Jose-Luis Prendes
Omaha
402-573-9559
New Mexico
Karen Kennemer
281-358-2282
kmk1224@aol.com
Ohio - Berea
Information: This group welcomes patients with PSP, CBD, MSA, Shy-Drager+Lewy Bodies and their caregivers, family and friends.
Date: 2nd Sunday of each month (unless a holiday)
Time: 1:00 - 3:00pm
Location: Southwest General Hospital, Room 15C (basement level), 18697 Bagley Road, Middleburg Heights, OH. Hospital is easy accessed from I-480, I-71 and the Ohio Turnpike. Free parking in garage in rear of hospital.
Contact: Pat Beekman, 440-234-0007, mombeekman@aol.com
Ohio
Rebecca & Dave Danglade
West Jefferson
614-879-6624
becdav@sbcglobal.net
Pennsylvania - Western/Pittsburgh North
Information: This group is a PSP/CBD support group.
Date: 3rd Thursday of the month
Time: 7:00 - 9:00 pm
Location: Ditilh United Methodist Church, 1270 Dutilh Road, Cranberry Township, PA 16066
Contact: Ruth Nulph, 724-287-8600, lnulph35@aol.com
Pennsylvania - Eastern/Philadelphia
Information: This group supports patients and caregivers dealing with Parkinson's plus
Date: 2nd Saturday of every other month
Time: 10:00 am
Location: Penn Neurological Institute
Contact: Jennifer Marcus-Aquaviva, 215-829-5071/ 215-829-7275, marcusj@pahosp.com
Texas - Houston
Karen Kennemer
281-358-2282
kmk1224@aol.com
Texas - Dallas area
Information: Support group for PSP and CBD patients and caregivers
Date: 3rd Saturday of the month (except August)
Time: 1:00-3:00 pm
Location: Presbyterian Hospital, 8200 Walnut Lane, Dallas, TX 75231, Conference Room
Contact: Terry Peake, 214-348-2633, terrypeake@sbcglobal.net
Texas - Austin
Information: This group currently supports caregivers of PSP, CBD and MSA patients but accept other neurodegenerative disease caregivers as needed.
Date: 1st Saturday of each month
Time: 2:00 - 4:00 pm
Location: Georgetown Library (call for directions)
Contact:
Kay Kitts, 512-255-6314. redbud55@sbcglobal.net
Vermont - Burlington
Information: Support group for caregivers of persons with Parkinson's with mild cognitve impariment and Parkinson's Plus sydromes (PSP, Shay Drager Sydrome, olivopontocerebellar atrophy, CBD, MSA, striatonigral degeneration, Parksinson's disease with ALS).
Date: 1st Monday of each month
Time: Varies; call for details
Location: Varies; call for details
Contact:
Janice Clements, 802-862-7464, janclem25@gmail.com
Virginia
Kathy Sands
Vienna
703-242-9322
kathy.m.sands@saic.com
Washington - Spokane
Information: This group welcomes patients and caregivers with PSP and CBD but is open to supporting other neurodegenerative diseases as needed.
Date: 2nd Friday of each month
Time: 11:00am
Location: Valley Hospital and Medical Center (on Mission Avenue about two blocks south of I-90 at the Pines exit in the Spokane Valley).
Contacts:
Jim Barron, Pullman, 509-332-6053, jimcbarron@yahoo.com
Mary Anne Memminger, Spokane Valley, 509-921-6645, manwa@bigplanet.com
Washington - Seattle
Information: A PSP and CBD support group open to patients, caregivers, friends, etc. who have or had a person with PSP/CBD in their lives.
Location: Virginia Mason Medical Center
Date: Once a month on Mondays (typically the first Monday but may vary; call for details)
Time: 6:30 - 8:00 pm
Contact: Mary Beth Simiele, 206-290-5391, mary.simiele@vmmc.org
Canada
Tracy Ellig
Kitchener
519-570-0254
pspsupportincanada@hotmail.com
Sandie Jones
Toronto
416-227-9700
sandie.jones@parkinson.ca
Australia
Glenn Mahoney
Victoria
+61 3 9551 112